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Synopsis of the Research Project
Title: NCCDs in India – A study of the gaps , quality and cost of care
Research Organization: IMRB International
Date of Release : January 16, 2009

Background: Chronic diseases (non-communicable diseases or NCDs) are major cause of mortality and disability in India. In a study report published by PWC-ASSOCHAM in 2007, in 2005, deaths due to chronic diseases in India accounted for 53% of all deaths and 44% of disability adjusted life years (DALYs). Though there is thorough improvement in technology in terms of treatment and the medicines, the system of financing and delivering care, particularly to these NCDs has been sluggish especially due to the changing nature of diseases. The crisis is both, in terms of the cost of treatment and, the quality and access to quality care.
In recent times the Government of India, NGOs and other stakeholders have laid stress on health care, particularly in infectious diseases and periodic epidemics segments - HIV / AIDS, Malaria, Dengue, Meningitis, Avian Influenza, etc. Nevertheless, in the process, chronic diseases and their care desire greater attention.
Chronic Care Foundation (CCF) founded, to promote good health by proactively minimizing the incidence and effects of chronic disease in society. It is committed to empowering the community with an accessible, efficient health care system that improves the safety and quality of care of patients with chronic, cardiovascular disease, diabetes and kidney disease in India; through prevention, advocacy, education and collaboration amongst stakeholders within the community.
Few of the objectives of CCF are:
Generate, collect and serve as a one point source of information on population health statistics related to Cardio Vascular Diseases, Diabetes and Kidney Diseases
Provide a platform for medical practitioners and other stakeholders to learn best practices in patient care
Provide a platform and develop guidance packages for patients, their families and the community in general about awareness of disease, therapies and consequences.
Advocate health promotion and chronic disease prevention and control, especially for poor and disadvantaged populations.
Provide accessible long-term supportive welfare services for continuous care, and facilitate with any other services that maybe required in connection with the above.
To achieve the above, for CCF, it is important to have reliable data on the care practices and cost of care for chronic diseases, particularly from the primary and secondary level. Many studies have been conducted across India on the prevalence of chronic diseases condition and their burden at various levels of healthcare, but they do not have information on vital areas.
It is therefore need of the hour to identify:
Types of services available in different regions of India – with respect to prevention, diagnostic, treatment & rehabilitation of Diabetes, Cardio Vascular Diseases (including Hypertension and Stroke) & Chronic Kidney Diseases
Quality of care and standards being followed at different levels and compare to International good practices in chronic diseases prevention, detection and treatment.
Gap between current level of Quality of Care received versus expected
Cost of Care – both direct and indirect for the beneficiaries
CCF has commissioned a research study across four regions of India to collect information with a special focus on three chronic diseases. The research will be conducted at all levels of service delivery (Primary, secondary & tertiary) and would cover Government as well as private facilities.
The Research Study has been commissioned to a professional Market Research Organization, experienced in social and health related research and has nationwide presence. This would facilitate the fieldwork in different states and would take care of the language barrier.
Objective: The objectives of the proposed research study are:
Identify international good practices in prevention, detection, care and rehabilitation of Non –communicable chronic diseases - Cardio Vascular Diseases (including Hypertension & stroke), Diabetes & Chronic Kidney Diseases and weigh against the standards being followed in India
Identify and analyse the types of Services available in different regions of India, with respect to prevention, diagnostic, treatment, care and rehabilitation of these three diseases
Identify and analyse the Quality of Care & standards being followed at different levels of service delivery points in India with respect to prevention, detection & treatment & its comparison to ideal/ standard/ desirable levels of practices for Non –communicable chronic disease
Identify the gaps between the current level of service provided by the service providers and level of service expected by the patients/ community at large
Assess the Cost of Care in terms of direct and indirect costs to the patient and the impact of the same on the treatment seeking behaviour.
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